Dexcom
It’s been awhile since I’ve blogged. That’s not for lack of ideas but rather for
lack of spare time. Working, being a
wife, being a mother, being a pancreas…doesn’t allow for much else.
Approximately three years ago, after much research and
suggestion from other T1D patients and parents, we decided to get Continuous
Glucose Monitors (CGMs) for our boys. I
was reluctant at first because I wasn’t sure it would really save them any
finger sticks, and I really didn’t want another adhesive attached to their
sensitive skin. We figured out some
hacks to minimize skin irritation, and now, frankly, we’re quite dependent on
these little devices.
There are others on the market, but the CGM we chose is made
my Dexcom. If you don’t already know, a
little filament (sensor) is inserted
under the skin and reads the glucose level in the interstitial fluids. The
sensor then sends a reading to the transmitter
(attached to the sensor). That
transmitter sends a signal out to the receiver
where we get a reading. It tells us what
the approximate current blood glucose is and which way it’s going…steady, up or
down. The receiver alarms for highs and
lows based on preset parameters. It’s
science, B!tch#$! (Sorry, we’ve been re-watching
Breaking Bad).
Science and Technology.
Science and Technology that allows for peace of mind, safety and rest.
Before Dexcom, we had to check their sugars at their
bedtime, at our bedtime, and anywhere between one and five times per night…each. That’s a lot of pricks, a lot of expensive
strips, a lot of trips up and down stairs, a lot of lost sleep. It’s no wonder I put on weight because the
sheer exhaustion. That said, a blood
test simply tells us what the sugar is in that
moment. It tells us nothing about
the trend. We talked the other day and
wondered how many times were one of our sons dangerously low in the night and
we never knew. Now, Dexcom allows us to
rest a little easier at night, although there are some nights we really want to
toss it out the window. We can count on
it to alarm to wake us up to treat a high or low. And, if we wake up on our own, we can just
check our phones (we have an app that follows the Dexcom readings called Dexcom Follow) and see how the boys are doing.
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| Days like this are great! Normal value, steady line. |
My boys are now old enough to stay home alone, but with
Diabetes in the mix, that’s a much more nerve-wrecking notion. With Dexcom and Dexcom Follow, I feel more at ease because any moment I can check
my phone and see how their glucose levels are running. That said, I can call and check and guide
their decision-making process if needed.
However, I’m blessed with some pretty smart little dudes who 99% of the
time have already done what I would’ve done had I been home.
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| Low but steady. |
I still have to work night shifts a night or two per
week. When I am home, Jerry and I take
turns getting up to handle Dexcom alarms.
It just seems like it wakes one of us while the other is in a different
phase of sleep and misses it. When I am
at work, I can still be Jerry’s backup pancreas and alarm. I feel comforted that I can check them in the
middle of the night while I am working.
We have a system. If something’s
amiss, I text him and give him time to message back. If I don’t receive a message back, I call and
wake him up. More than once, he was in
that deep phase of sleep where he did not hear the alarm. We’re a team and we
do what has to be done to protect our precious guys. #Teamwork.
 |
| Nights like this stink. Low and falling.... |
My girls at work are fabulous. They’ve become very used to the Dexcom Follow alerts. Many even know the difference between the
high alarm and low alarm. They are like extra backup wives to Jerry or third, fourth, fifth and sixth pancreases to the boys…. If my phone alarms while I am away from it,
they will run it to me and tell me “Diabetes alarm went off. One of the boys need help!” They also make sure I follow up with Jerry if
treatment is needed. They’re on it with
me. #Teamwork.
My initial fear that this wouldn’t save them finger-sticks
was unfounded. With advancing technology
and upgrades, they’re really only required to check their sugar and calibrate
the device twice per day. If all is
steady and well, they can rely on the reading to dose for meals. Obviously, if they are high or low, we
require they check and treat according to what the blood reading is, but
overall, it does save them some pricks….which saves on strips.
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| This warrants a phone call.... |
JDRF is one of the primary organizations that has funded research
for such technologies like Dexcom. They
work with the FDA for approval of such life-saving devices. They lobby Congress for Medicare, Medicaid
and private insurance coverage of CGMs, knowing such devices foster
independence and improve safety of Diabetes patients. I honestly feel that on more than one
occasion, Dexcom has saved my boys’ lives when they’ve gone low unexpectedly or
without explanation. If that annoying
alarm hadn’t awakened us, then…. I don’t
even want to think about what if.
Word on the street is that Dexcom is teaming up with Omnipod
(my boys’ insulin pump company) to have the devices talk to each other and
serve as an artificial pancreas. 2018 is the projection! Can’t wait.
Science and technology. Research
funded by JDRF.
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| Picture of an Omnipod and a Dexcom sensor side by side. You can see what is injected under the skin. |
If you’re on the fence about getting Dexcom, I’d highly
recommend it. It takes some practice and
finesse, but it’s well worth the time and money spent. If Diabetes and/or CGMs aren’t on your radar,
then you can help by helping us support JDRF and their efforts to make life
better for those with T1D, and you can write your Congressperson to encourage
their support of the Special Diabetes Program and insurance coverage for
Diabetes supplies. #CoverageforControl
You can help today by supporting The AA Team as we help JDRF
turn Type One into Type None for Asa and Aiden!
www2.jdrf.org/goto/FuseAATeam. There's no gift too big or small as every dollar raised is a dollar closer to a cure.
Rhonda
